I received a phone call the day after my MRI from my doctor at 9:35am. I was terrified when I saw the doctor’s phone number appear on my cell’s caller id. I immediately left my meeting and took the call bracing myself for the terrible news that surely awaited me. When the doctor spoke he asked me if anyone had called me about my MRI yet. I immediately thought, “When did they have time? I had my MRI yesterday after normal business hours…” but I just said no. At that point I was absolutely trembling and then he said that my syrinx (cyst) has not grown and appeared unchanged according to the radiologist. WHEW!
The only thing that was left to ask was, why in the world are my symptoms increasing if nothing has changed? I have a doctor’s appointment soon and I will discuss the possibilities with him. The good thing is that I completely trust my doctor with anything he decides we should do to try to minimize my symptoms. He’s really great and I couldn’t ask for a better pain specialist. I will see my neurosurgeon in a few months for follow-up, but since there is no change in my syrinx I am likely only going to have to discuss my increase in symptoms.
Today has been a rough day for my back. I’m currently laying down in my bed typing this flat on my back trying to minimize the pain in my shoulder blade area. It can be quite excruciating at times and I am just glad that this doesn’t happen every day. Tonight it is affecting my ability to sleep. It’s nearly 10pm and I have tried for a while to fall asleep. My bedtime normally is between 8:30 and 9pm because I have to be up so early for work, lately my bedtime has gotten later due to the pain. Keep up the prayers and positive thoughts regarding my disorder. Some days I can completely tell that the prayers pay off, others I feel like my back my be broken but no matter what, I always look forward to the sunshine of life during the days where pain is minimal. Here’s to the sunshine!
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