Two weeks from today (June 14, 2014) I will host a walk for Syringomyelia,
Chiari and related conditions. I am excited to spread awareness to individuals
who have not heard about these conditions. I am also excited to potentially
bring together other individuals who have been diagnosed with one of these
conditions so we can support one another in our challenges.
After over three years the challenges have not gotten much
easier, rather they have just become part of my daily routine. I hope that
someday I will be able to be a much stronger advocate for these conditions. I
am hopeful the efforts those of us are putting into our charity walks,
fundraisers and awareness events will help lead to a cure and/or better
treatment possibilities in the future.
If you are interested in participating in the unite@night
walk in Luling, Texas, please visit http://unitenight.kintera.org/luling
and register as a walker. You can either join the team already in place (Luling
unite@night) or you can create your own team. If you raise $50 or more you will
receive a unite@night t-shirt and light-up foam stick. Other prizes will be
available for those raising more.
I will have a wealth of information to provide to those who participate in the walk. We will have a lot of fun learning about these conditions and being together! I hope to see you there.
I will have a wealth of information to provide to those who participate in the walk. We will have a lot of fun learning about these conditions and being together! I hope to see you there.
