I have had an increase in symptoms for the last month or so and I've become very concerned. I've now begun to feel a terrible burning sensation in my neck & face. It feels similar to heart burn but a little more intense.
With this increase in pain and symptoms and lack of increase in cyst size, I'm becoming more fearful that it is something more than just my syringomyelia. I spoke to my mom on the phone a lot this week trying to figure out what is going on with me. When I thought back I remembered there was a time we were scared this was Lupus and I never followed through on the testing because of the syringomyelia diagnosis. I now have more knowledge about Multiple Sclerosis and it seems it potentially something I could have in addition to my sm.
I go to the doctor to discuss this on Monday so please keep me in your prayers. I fear for my kids if they have a mom with two deteriorating disorders that could also be living inside of their precious little bodies. Syringomyelia is bad enough, I just pray that is all I have at this point.
