Never Say Never (No it's not about Justin Beiber)

Well it has been an interesting few weeks. I apologize for my lack of blogging; however, I had a good string of days and I wanted to utilize them to the fullest. I couldn’t believe that I had more than one good day in a row, considering I had just written how that never happens. I guess that stands to reason, never say never.

Last week I had an incredible week. Everything seemed to be going strong and healthy for me. I did continue to twitch but it is not something that will bother me as much as the pain. Two days ago the pain came back and it was a little frustrating. Once I started having good days, I expected them. It was a blow to my senses when I woke up with my back pain again. I have been able to avoid taking my pain medications for several weeks. I am trying to learn to deal with the pain naturally at this point. I am laying flat more often, resting more and actually asking for help! Those of you who know me realize that is a HUGE feat for me because I am so independent. My mother came over yesterday to help me with my daughter’s hair. As you know it’s difficult for me to wash and style my own hair, but my daughter has this super curly hair that is difficult to comb. When I wash and style her hair, it takes me hours because her hair tangles so quickly and easily. God bless my mother for her patience and strength through this endeavor. She has been my rock and I love her so much.

At this time my symptoms are as follows: headache is still persistent but the migraines have subsided for the time being (knock on wood), I have mid-back pain (by the shoulder blades) that resonates up to my neck and down my spine, I have twitches that happen quite frequently (although they are becoming less “visible”), and I am run down and tired. I do celebrate the victories of not having migraines…that is incredible! I am still able to function as a normal person and I don’t let this get me down. I can work, interact with people, and have a “normal” life at this point. I am trying to live my life to the fullest and show people that even though I am afflicted with a rare neurological disorder, I can still be me.